Privacy Lost or Benefit Gained: Healthcare and Social Platforms

I recently watched a video (Note: auto plays when clicked) from WebProNews.com with Sona Mehring, who created this incredible social support network for people who are diagnosed with potentially fatal diseases.  Her platform is called CaringBridge.org and it has been around since 1997.

There is a lot of debate about Healthcare in the social sphere due to HIPPA laws and people worried about preserving their privacy. However, to us, Healthcare and social platforms are a win-win due to the basic need for humans to congregate when times are tough.

We need each other on a basic level to understand and validate the tough times and to celebrate our successes.  It is increasingly important for people to feel connected – and if social platforms can help someone who feels horrible due to their health, feel support (without having to travel, get dressed up, or worry about how they look, or if they will feel ok once they get somewhere), then it is definitely worth having.

It should be easy enough to create an opt-in type situation where those who feel strongly that they don’t want to be involved in an online support structure, don’t have any of their information shared (as in their diagnosis in order to be in a specific targeted group for that condition).  This would keep everyone protected while still allowing the support network to work for those who wish to participate.

What do you think about Privacy in Healthcare and the ability for Social Platforms to reach beyond for those who may be home bound?

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